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Tag: 24 hour urine collection

A Brain Tumor: Naming The Sick Monster

Although I was born healthy, the normal-happy-kid-thing didn’t last long. At age eight, I started having trouble walking long distances and standing for prolonged periods of time. My legs would get all wobbly and the room would get swirly and I would just feel exhaustion sweep over me like a blanket covering me from head to toe. I would just want to lie down on my bed, curl up around my collection of teddy bears, and take a nap, and that was even before I developed a brain tumor.

Things had significantly deteriorated by the age of nine. By the age of ten things were so bad that I’d had my first hospitalization because it became physically impossible for me to hold down any food or drinks. I ended up with my first NJ tube and my first surgery. The diagnosis was gastroparesis. The rest of my childhood was spent … Find Out What Happens Next

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Thyroid Issues and an Elusive Diagnosis

My birthday had been a momentous occasion. Ever since I was eight years old I had been suffering from a rare, degenerative, life-threatening chronic illness where tomorrow was not a guarantee (Just a few days after my birthday I’d had severe anemia and an underactive thyroid added on to my growing list of health issues), so my nineteenth birthday was something to be joyously celebrated.

I also was basking in the glow of having graduated high school and finished up my first year of college simultaneously. I had been homeschooled through half of middle school and all of high school so I was able to take college courses for both high school and college credits.

After my birthday and graduation, I suffered from what my parents called boredom or anxiety or a letdown.  They had a new theory every day. In my opinion, which eventually got backed up by Dr. … Find Out What Happens Next

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The Medical Mystery To Be Uncoded

From the time I was nine my entire life had consisted of medical appointments after medical appointments. By the time I was nine and a half I had been misdiagnosed with an eating disorder, and at age ten I passed out in an elevator and was sent to the hospital for my first hospitalization and first feeding tube.

My first feeding tube was an NG tube. It stayed in the whole month that I was being stabilized on the medical unit. On the medical unit, I was put on specialized IV fluids, hooked up to a heart monitor, a blood pressure monitor, and an oxygen monitor. The hospital discovered that I had been in acute kidney failure and had to nurse my kidneys back to health.

After a month in the medical unit, I was finally pronounced medically cleared and was transferred to the pediatric psychiatric unit with the NG … Find Out What Happens Next

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