Tag: tube feeding
by Becca on November 29, 2020
Living at Hell-Crest Commons was a nightmare. After a three-month-long hospital stay at my local hospital for a flare up of my autoimmune-mediated small fiber autonomic poly neuropathy (that was getting worse and worse every few months) I had gotten really deconditioned.
“You need a whole lot of PT and OT to get you back to a point where you can function at home and in the community,” the doctor and case manger both had explained to me months ago. My impression of the situation was that I was going to Hillcrest Commons for a few months for therapy and then going back home.
After three months at the nursing home, we had a big meeting and they dropped a bombshell on me. My parents weren’t going to let me come home. They didn’t want to take care of me anymore because they wanted their ffreedom. I was a burden … Find Out What Happens Next
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Tagged as: being underweight, central line, Chronic illness, complex care team, dehydration, diabetes insipidus, dysautonomia, foley catheter, gastroparesis, GJ tube, hypoglycemia, hypokalemia, hypotension, IV fluids, J tube versus G tube, lethal heart rhythms, low blood sugar, low potassium, Mass General Hospital, nasal airway, nausea, neuropathy, nursing home abuse, nursing home neglect, ombudsmen, pain meds, Port-a-cath, Sick, Small Fiber Autonomic Polyneuropathy, spoonie, trauma room, tube feeding, tubie, ventricular fibrillation, ventricular tachycardia, vomiting
by Becca on September 27, 2020
Feeding through a J port is supposed to help people with gastroparesis get much-needed nutrition that they can’t get by eating orally or by getting fed through a G tube. A person with gastroparesis has a paralyzed stomach so a J tube which goes straight into the Jejunum skips over that paralyzed stomach and goes right into the middle of the small intestine is a way to give the person.
Now that I had the tube feeds and the IV fluids, I was feeling a lot better physically most of the time as I wasn’t actively starving to death, but I would still have breakthrough periods where the pain would get intense, or I’d get nauseous and start vomiting huge volumes of bile and/or tube feed. The tube feed was going into my intestines through my J tube, which was supposed to prevent me from vomiting it up. Still, it … Find Out What Happens Next
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Tagged as: ambulance rides, atelectasis, autoimmune, autonomic neuropathy, dehydration, dextrose, diaphragmtic weakness, dysautonomia, family issues, fluid and electrolyte issues, gastroparesis, GJ tube, hospital, hypokalemia, immodium, IV fluids, IVIG, low potassium, nursing home, oxygen dependent, pepto bismol, POtS, small fiber neuropathy, therapy, tube feeding, tubie