Tag: vomiting
by Becca on November 29, 2020
Living at Hell-Crest Commons was a nightmare. After a three-month-long hospital stay at my local hospital for a flare up of my autoimmune-mediated small fiber autonomic poly neuropathy (that was getting worse and worse every few months) I had gotten really deconditioned.
“You need a whole lot of PT and OT to get you back to a point where you can function at home and in the community,” the doctor and case manger both had explained to me months ago. My impression of the situation was that I was going to Hillcrest Commons for a few months for therapy and then going back home.
After three months at the nursing home, we had a big meeting and they dropped a bombshell on me. My parents weren’t going to let me come home. They didn’t want to take care of me anymore because they wanted their ffreedom. I was a burden … Find Out What Happens Next
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Tagged as: being underweight, central line, Chronic illness, complex care team, dehydration, diabetes insipidus, dysautonomia, foley catheter, gastroparesis, GJ tube, hypoglycemia, hypokalemia, hypotension, IV fluids, J tube versus G tube, lethal heart rhythms, low blood sugar, low potassium, Mass General Hospital, nasal airway, nausea, neuropathy, nursing home abuse, nursing home neglect, ombudsmen, pain meds, Port-a-cath, Sick, Small Fiber Autonomic Polyneuropathy, spoonie, trauma room, tube feeding, tubie, ventricular fibrillation, ventricular tachycardia, vomiting
by Becca on November 17, 2020
I had been living in a nursing home that I had not-so-jokingly been referring to as Hell-crest Commons for months, with its’s evil nurse Ratched (Ahem, I mean Jillian) the nurse practitioner who was my primary provider and in charge of my care there.
After spending 5 months at Massachusetts General Hospital in 2014 I had learned that I had a severe and rare condition called Autoimmune Small Fiber Autonomic Polyneuropathy (Autonomic SFN) and would require IV fluids and tube feeds or TPN (IV nutrition) for the rest of my life.
Flash forward a year, I had spent three months at my local hospital for what started as a bowel obstruction and then just morphed into a whole bunch of other issues. During that hospitalization I just got so sick that there was no way I could just go home from there, so I had been transferred to Hell-crest Commons … Find Out What Happens Next
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Tagged as: Berkshire Medical Center, chronically ill, diarrhea, G tube drainage, Hillcrest Commons, hospital, illegally invoked healthcare proxy, IV fluids, Mass General Nerve Injury Clinic, nausea, Sick, Small Fiber Autonomic Polyneuropathy, spoonie, tubie, vomiting
by Becca on March 20, 2019
My very first symptoms started when I was eight and couldn’t stay standing up through the whole prayer service at my Orthodox Jewish Day School every morning. Also that year, I started having trouble with holding down food and drink. Between ages eight and ten the issues just intensified and turned into a monster that threatened to tear my whole family apart, including the lives of my two little brothers, Michael and Jonathan (names altered for privacy issues) who were having their own issues that got shoved to the back burners because my issues were life-threatening and there’s were just life-altering. My GI issues were so intense by the time I passed out in an elevator at age ten that I hadn’t even been able to hold down any food or drinks at all. Not even sips of Gatorade.
I had my first hospitalization after passing out in that elevator. … Find Out What Happens Next
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Tagged as: bezoar, bowel obstruction, Chronic illness, family issues, feeding tube, gastroparesis, monitored anesthesia care, motility disorder, new diagnosis, NJ tube, paralyzed stomach, pediatrics, refeeding syndrome, Sick, spoonie, tubie, vomiting
