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Tag: chronic intestinal pseudo-obstruction

Side By Side With a Handsome Stranger

Six months after my admission to Hell-crest Commons I was finally preparing to leave.  I wasn’t going home.  My relationship with my parents had changed completely.  But I was preparing to leave.  My feelings about the situation were very mixed, but I was very happy that I would no longer be living on a medically complex floor of a nursing home.  No matter how nice and buddy-buddy Jillian the nurse practitioner at Hell-crest Commons had tried to become with me, I would never be comfortable with her.  Not after everything she had put me through.

However on Monday, the day before my official discharge date, she found me in my room early in the morning and pulled me into her office.

“Can you transfer yourself into that crappy nursing home wheelchair and meet me in my office?” she had asked me.

“Sure,” I had told her, assuming she was just … Find Out What Happens Next

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Being a Professional Patient is Hard Work

When you have any sort of severe life-threatening chronic illness, there is a terrible feeling of being at the mercy of the medical system.  If your doctor is in a bad mood it could be the end of your life. That is not an exaggeration.

I suffer from a disease called Small Fiber Autonomic Polyneuropathy, which is a very rare condition that most doctors have never even heard of, because of that I often get denied the proper treatment even though I know what the right thing to do is. The doctors don’t like to admit they don’t know something so they just plow forward with their ideas and I’m the one that gets hurt or sicker or almost dies (not an exaggeration, I’ve lost count of how many times I’ve almost died due to doctors who don’t know about my illness deciding they know more than me and going … Find Out What Happens Next

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