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Tag: end stages of small fiber autonomic poly neuropathy

How To Survive Crashing Vital Signs and Bad Doctors

Trying to Maintain Normal Vital Signs

My life has never been what you would call easy or simple.  Every day was a struggle to even attempt to maintain normal vital signs. Doctors unfamiliar with Small Fiber Autonomic Polyneuropatny had no idea how to treat me. Over the last few years, I had been losing more and more mobility. At this point, I was wheelchair-bound. I needed one or two people to help me stand and pivot to transfer in and out of my wheelchair.,

Because of my gastroparesis, I could eat nothing by mouth and was on tube feeds 24/7. My body was starting to reject the tube feeds. The problem was, I had such a poor immune system that the doctors were reluctant to start me on TPN (IV nutrition). Because of the high sugar content in TPN, it is a breeding ground for infection. In addition to the … Find Out What Happens Next

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Being a Professional Patient is Hard Work

When you have any sort of severe life-threatening chronic illness, there is a terrible feeling of being at the mercy of the medical system.  If your doctor is in a bad mood it could be the end of your life. That is not an exaggeration.

I suffer from a disease called Small Fiber Autonomic Polyneuropathy, which is a very rare condition that most doctors have never even heard of, because of that I often get denied the proper treatment even though I know what the right thing to do is. The doctors don’t like to admit they don’t know something so they just plow forward with their ideas and I’m the one that gets hurt or sicker or almost dies (not an exaggeration, I’ve lost count of how many times I’ve almost died due to doctors who don’t know about my illness deciding they know more than me and going … Find Out What Happens Next

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