Tag: hypothyroid
by Becca on February 15, 2021
In December of 2015, I was finally discharged from Hell-Crest Commons, the nursing home that I’d been living in for the last six months, and I had moved into the Independent Living Section of Side By Side Assisted Living where I would be getting something called PCA care which basically meant people that I chose myself, and that I was the boss of and would train would be coming into my apartment at Side By Side to help take care of me. because it would be 2 to 4 weeks before the PCA care kicked into effect my parents had agreed to pay out-of-pocket for a private duty aide until then.
Lesley, the CNA who was going to be my private duty aide, was right on time to meet Christy, my mom, and me, over at my apartment on the evening of the Tuesday I moved in. She drove a … Find Out What Happens Next
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Tagged as: anemia, atelectasis, body wide weakness, chronically ill, diaphragmatic weakness, extremely immunocompromised, first crush ever, gastroparesis, GJ tube, global dysmotility, heart arrythmias, hypothyroid, issues retaining electrolytes in kidneys, low white blood cell count, meeting new private duty CNA, neurogenic bladder, neuropathy, On G tube to drainage, on IV hydration, on Tube feedings through J tube, orthostatic hypotension, parapalegic, Poirt-a-cath, POtS, relpasing brain tumor, seizures, Sick, Small Fiber Autonomic Polyneuropathy, spoonie, straight catheters, total digestive tract failure, training new private duty aide, tubie, using supplemental oxygen, wheelchair bound
by Becca on January 3, 2021
When you have any sort of severe life-threatening chronic illness, there is a terrible feeling of being at the mercy of the medical system. If your doctor is in a bad mood it could be the end of your life. That is not an exaggeration.
I suffer from a disease called Small Fiber Autonomic Polyneuropathy, which is a very rare condition that most doctors have never even heard of, because of that I often get denied the proper treatment even though I know what the right thing to do is. The doctors don’t like to admit they don’t know something so they just plow forward with their ideas and I’m the one that gets hurt or sicker or almost dies (not an exaggeration, I’ve lost count of how many times I’ve almost died due to doctors who don’t know about my illness deciding they know more than me and going … Find Out What Happens Next
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Tagged as: Baystate Home Infusion back in 2015, brain tumor, chronic intestinal pseudo-obstruction, chronically ill, daily IV fluids, diabetes insipidus, dysautonomia, end stages of small fiber autonomic poly neuropathy, first appointment with Dr. Rose, G tube to drainage 24/7, gastroparesis, global dysmotility, high heart rate, hypothyroid, importance of advocating for self, increase doses of Florinef and Midodrine, Jeff being a sweetheart, life threatening chronic illness, low blood pressure, Mass General "Patient Gateway Portal", Medical Arts Complex in Pittsfield, medical PTSD, Muscles Harford, nephrology appointment, Port-a-cath, Sick, skin punch biopsy of less than 1%, Small Fiber Autonomic Polyneuropathy, spoonie, total digestive tract failure, tubie, wasting time waiting for chair van ride, wheelchair van ride paperwork
by Becca on September 4, 2019
My birthday had been a momentous occasion. Ever since I was eight years old I had been suffering from a rare, degenerative, life-threatening chronic illness where tomorrow was not a guarantee (Just a few days after my birthday I’d had severe anemia and an underactive thyroid added on to my growing list of health issues), so my nineteenth birthday was something to be joyously celebrated.
I also was basking in the glow of having graduated high school and finished up my first year of college simultaneously. I had been homeschooled through half of middle school and all of high school so I was able to take college courses for both high school and college credits.
After my birthday and graduation, I suffered from what my parents called boredom or anxiety or a letdown. They had a new theory every day. In my opinion, which eventually got backed up by Dr. … Find Out What Happens Next
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Tagged as: 24 hour urine collection, A1C, adult onset diabetes, blood tests, BSN, Chronic illness, diabetes, exhaustion, fasting blood glucose, fatigue, gastroparesis, headache, high blood sugar, hypothyroid, nausea, nursing school, spoonie, thyroid supplement, tired, type two diabetes, weight gain
by Becca on September 2, 2019
From the time I was nine my entire life had consisted of medical appointments after medical appointments. By the time I was nine and a half I had been misdiagnosed with an eating disorder, and at age ten I passed out in an elevator and was sent to the hospital for my first hospitalization and first feeding tube.
My first feeding tube was an NG tube. It stayed in the whole month that I was being stabilized on the medical unit. On the medical unit, I was put on specialized IV fluids, hooked up to a heart monitor, a blood pressure monitor, and an oxygen monitor. The hospital discovered that I had been in acute kidney failure and had to nurse my kidneys back to health.
After a month in the medical unit, I was finally pronounced medically cleared and was transferred to the pediatric psychiatric unit with the NG … Find Out What Happens Next
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Tagged as: 24 hour urine collection, cortisol, diabetes, EJ lines, EKG, glipizide, High blood pressure, high blood sugar, high glucose, hypertension, hypokalemia, hypothyroid, ICU, intravenous lines, IV access, levothyroxine, low potassium, Port-a-cath, stepdown unit, telemetry, V-tach
