Tag: weight loss
by Becca on December 9, 2020
About an hour earlier I had arrived at the only rehab/nursing home in the area that would take someone as medically fragile and medically complex as I am. The nursing home was called Hillcrest Commons, but I had started to call it Hell-crest Commons. From the moment I rolled in the door I knew I was in trouble, but when I med with the nurse practitioner that would be in charge of my case while I was there, her name was Jillian, I had full force alarm bells going off as loud as possible in my head. She basically told me that my disease wasn’t really as bad as I thought it was and that I didn’t need my tube feeding or my IV fluids. I knew this was wrong, I knew what the leading experts in the world on my disease had said about my treatment and I was … Find Out What Happens Next
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Tagged as: birthday, celiac disease, Chronic illness, code blue, death, DNR, feeding tube, friendship, G tube, GJ tube, grief, Hello Kitty, Hoyer lift, IV fluids, loss, low blood pressure, meetings, nursing home, nursing home neglect, occupational therapy, pain, physical therapy, Port-a-cath, Sick, spoonie, stand and pivot transfer, stuffed animal, tubie, underweight, weight loss
by Becca on July 16, 2019
If you wanted to look up the word sick in the dictionary, you would probably find a picture of me. Ever since I was eight years old and started struggling with muscle fatigue and appetite loss I have been on a downward trend in my health. By the time I was ten I had had my first NG tube. This was followed by my first surgery when the NG tube caused a bowel obstruction. Then I had to deal with an even thicker NG tube to suction. This was followed by my first NJ tube.
I spent a good chunk of fifth grade in the hospital, and went home from the hospital with the NJ tube still in place and a diagnosis of severe gastroparesis. The rest of my childhood was spent racking up frequent flier miles at my local children’s hospital. At age thirteen my heart rhythm disturbances took … Find Out What Happens Next
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Tagged as: adolescence, Chronic illness, family issues, feeding tube, gastroparesis, global dysmotility, homeschooled, hospital, hospital life, motility disorder, NJ tube, preteen, refeeding syndrome, Sick, spoonie, tubie, weight loss
