Tag: cortisol
by Becca on December 26, 2019
Although I was born healthy, the normal-happy-kid-thing didn’t last long. At age eight, I started having trouble walking long distances and standing for prolonged periods of time. My legs would get all wobbly and the room would get swirly and I would just feel exhaustion sweep over me like a blanket covering me from head to toe. I would just want to lie down on my bed, curl up around my collection of teddy bears, and take a nap, and that was even before I developed a brain tumor.
Things had significantly deteriorated by the age of nine. By the age of ten things were so bad that I’d had my first hospitalization because it became physically impossible for me to hold down any food or drinks. I ended up with my first NJ tube and my first surgery. The diagnosis was gastroparesis. The rest of my childhood was spent … Find Out What Happens Next
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Tagged as: 24 hour urine collection, adrenal glands, Chronic illness, cortisol, cushing tumor, disease, dysautonomia, endocrinology, family, grandmother, invaldiation, malabsorption, neurosurgery, nursing home, pituitary tumor, Sick, spoonie, treatable diagnosis, tumors, validation
by Becca on December 8, 2019
My Safety Net
My safety net was what my whole life manageable. My life was pretty much one big medical issue. Luckily I had two parents and two brothers to support me. My safety net was made up of two people, my mom, and my dad.
They didn’t always make the best decisions for me, in fact, sometimes their decisions messed things up for me really badly, but they loved me 100% unconditionally and always tried their hardest to make the best decisions for me.
It all started when I was eight and began dealing with muscle fatigue, then when I was ten I first got diagnosed with gastroparesis (a paralyzed stomach) and had to have emergency surgery to have 2.5 inches of dead bowel removed and then had to have an NJ tube placed.
My NJ Tube
An NJ tube is a tube that goes in through your nose … Find Out What Happens Next
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Tagged as: borderline personality disorder accusations, brain tumor, Chronic illness, cortisol, denial, family issues, gastroparesis, hospitals, Mass General Hospital, mother daughter bond, MRI, nausea meds, neurosurgery, pain meds, pituitary tumor, ptsd, Sick, spoonie, testing
by Becca on November 30, 2019
As the holiday season was going into full swing and most people were worried about what presents they were going to get for their boyfriends or parents, I was busy worrying about my upcoming neurosurgery. Being sick and needing surgery was nothing new for me, but I had never had my brain operated on before.
At the age of ten, I’d been diagnosed with a chronic, degenerative form of gastroparesis, and as I got older it became evident that there was something further wrong with me as well, but no one knew exactly what. We certainly never had the idea that I had a brain tumor and would need neurosurgery to have it removed.
I spent my entire childhood, from 2001 to 2010 going in and out of hospitals for heart issues, blood pressure issues, hypovolemic shock, electrolyte issues, passing out, and complications from gastroparesis. When my blood pressure issues … Find Out What Happens Next
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Tagged as: ACTH, adrenal glands, anesthesia, brain tumor, Chronic illness, conscious sedation, cortisol, dysautonomia, femoral artery central line, fluid and electrolyte issues, frienship, gastroparesis, high cortisol, inferior petrosal sinus sampling test, interventional radiology, invasive testing, monitored anesthesia care, neurosurgery, overproduction of cortisol, pain control, pituitarry tumor, Sick, spoonie, stress hormone, surgery
by Becca on September 2, 2019
From the time I was nine my entire life had consisted of medical appointments after medical appointments. By the time I was nine and a half I had been misdiagnosed with an eating disorder, and at age ten I passed out in an elevator and was sent to the hospital for my first hospitalization and first feeding tube.
My first feeding tube was an NG tube. It stayed in the whole month that I was being stabilized on the medical unit. On the medical unit, I was put on specialized IV fluids, hooked up to a heart monitor, a blood pressure monitor, and an oxygen monitor. The hospital discovered that I had been in acute kidney failure and had to nurse my kidneys back to health.
After a month in the medical unit, I was finally pronounced medically cleared and was transferred to the pediatric psychiatric unit with the NG … Find Out What Happens Next
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Tagged as: 24 hour urine collection, cortisol, diabetes, EJ lines, EKG, glipizide, High blood pressure, high blood sugar, high glucose, hypertension, hypokalemia, hypothyroid, ICU, intravenous lines, IV access, levothyroxine, low potassium, Port-a-cath, stepdown unit, telemetry, V-tach
