fbpx

Tag: mother daughter bond

Landing a Doctor Down From an Ego Trip

Life is a funny thing, you squeeze onto it too hard and it slips out of your grasp.

Starting from when I was eight years old I’ve been sick.

I had my first hospitalization and my first feeding tube and my first surgery in the year 2000 at age 10. In 2012 I had a tumor removed from my brain. In 2013 I was life-flighted from my local hospital to Mass General Hospital to have a brain bleed repaired. In 2014 I became so incapacitated by a mystery illness that obviously went deeper than just gastroparesis alone or just a brain tumor alone, or just a neurogenic bladder alone, that I spent 5 months at Mass General hospital getting stabilized and getting tested until we figured out what was wrong with me. In the spring of 2015 I had spent three months at my local hospital for a bowel obstruction … Find Out What Happens Next

{ 1 Comment }

Missing a Safety Net: De-nial Not Just a River Anymore

Myself getting prepared for a long day of testing at Mass General Hospital with my mom who is my safety net waiting in the car

My Safety Net

My safety net was what my whole life manageable.  My life was pretty much one big medical issue. Luckily I had two parents and two brothers to support me.  My safety net was made up of two people, my mom, and my dad. 

They didn’t always make the best decisions for me, in fact, sometimes their decisions messed things up for me really badly, but they loved me 100% unconditionally and always tried their hardest to make the best decisions for me.

It all started when I was eight and began dealing with muscle fatigue, then when I was ten I first got diagnosed with gastroparesis (a paralyzed stomach) and had to have emergency surgery to have 2.5 inches of dead bowel removed and then had to have an NJ tube placed.   

My NJ Tube

An NJ tube is a tube that goes in through your nose … Find Out What Happens Next

{ 2 Comments }