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Tag: terminal illness

Sunshine Yellow Rooms, Freedom, and Fighting Terminal Illness With Hope

My nerves were humming so loud that I could feel them vibrating from inside of me, or maybe that was just my heart that was still always beating too fast no matter what medication I took or how much IV fluid got infused into me.

After six months of living in a nursing home that I not-so-lovingly referred to as Hell-Crest Commons I was going to visit Side By Side Assisted Living and meet with one of the Nurse Managers there, whose name was Chrissy. Tanya the social worker had also arranged for my weekly scheduled visit with my mom to be that day as well. I had no idea what to even begin to expect.

Side By Side was just a few minutes from the nursing home and it was a big main building that was actually two houses combing together and then a bunch of other houses in … Find Out What Happens Next

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Landing a Doctor Down From an Ego Trip

Life is a funny thing, you squeeze onto it too hard and it slips out of your grasp.

Starting from when I was eight years old I’ve been sick.

I had my first hospitalization and my first feeding tube and my first surgery in the year 2000 at age 10. In 2012 I had a tumor removed from my brain. In 2013 I was life-flighted from my local hospital to Mass General Hospital to have a brain bleed repaired. In 2014 I became so incapacitated by a mystery illness that obviously went deeper than just gastroparesis alone or just a brain tumor alone, or just a neurogenic bladder alone, that I spent 5 months at Mass General hospital getting stabilized and getting tested until we figured out what was wrong with me. In the spring of 2015 I had spent three months at my local hospital for a bowel obstruction … Find Out What Happens Next

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