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Tag: MRI

Pituitary Tumor; A Pain in the Head

my neurosurgeon removing my pituitary tumor

Ever since I was ten years old I had carried a diagnosis of a chronic, incurable disease called gastroparesis.  Really my issues started at age eight and become undeniable around age nine, but back then everyone wanted to blame my GI symptoms on things like stress, control issues, behavior problems or even eating disorders. At that point, there was no mention of any pituitary tumor.

At age 19, I found out that I also had a brain tumor growing on my pituitary gland.   My kidney doctor, Dr. Green, had ran test after test on me, swearing she’d figure out what was wrong with me until on a whim she ran a 24-hour urine collection for cortisol and creatinine on me,

She didn’t expect to find much, as my blood levels of cortisol were normal, but she had exhausted all other options and knew something was wrong with me.  Dr. Green Find Out What Happens Next

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Missing a Safety Net: De-nial Not Just a River Anymore

Myself getting prepared for a long day of testing at Mass General Hospital with my mom who is my safety net waiting in the car

My Safety Net

My safety net was what my whole life manageable.  My life was pretty much one big medical issue. Luckily I had two parents and two brothers to support me.  My safety net was made up of two people, my mom, and my dad. 

They didn’t always make the best decisions for me, in fact, sometimes their decisions messed things up for me really badly, but they loved me 100% unconditionally and always tried their hardest to make the best decisions for me.

It all started when I was eight and began dealing with muscle fatigue, then when I was ten I first got diagnosed with gastroparesis (a paralyzed stomach) and had to have emergency surgery to have 2.5 inches of dead bowel removed and then had to have an NJ tube placed.   

My NJ Tube

An NJ tube is a tube that goes in through your nose … Find Out What Happens Next

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